Decisions

Since the fire making decisions has been nearly impossible (for both Dan and myself). Where do you want the lights? I don't care. The outlets? Don't care. Just put them somewhere. Too many decisions! With Lyme I have even more, and the more information I get, the more confused I am, and the further I am from the answers.

CDC and IDSA or ILADS? An LLMD (Lyme-Literate Doctor) or my neurologist? Oral antibiotics or IV? Long-term antibiotics or 28 days? Doxycycline or Rocephin? Supplements or no? Change my diet to a low-carb diet with fiber pills or a high fiber diet? Ambien or no Ambien?

We saw the neurologist, and she disagrees with the Seattle doctor (though understanding the battle in the background of Lyme, I was expecting this). She is confident we can treat the CNS (central nervous system) Lyme with 28 days of IV antibiotics. The Seattle Dr. says it will take 1-2 years, but he is confident he can treat with oral antibiotics. The neurologist says to treat the symptoms in the absence of confirmed blood tests. The Seattle Dr. says to base the diagnosis off clinical symptoms. The acupuncturist says he can treat with a high dose of salt and other supplements. The Seattle Dr. says only a couple of supplements are needed. Everyone tells me to take Ambien, but without it, I now can't fall asleep, and I don't hear Kellen crying.

I know there are differing opinions in medicine, but this is outrageous. It is appalling to me that a known disease can have so much controversy and variable treatment decisions. It's even worse that they can't discern between Lyme and not Lyme and create a legitimate and accurate diagnostic test.

I go to doctors because they are supposed to know. I don't want them to make me more confused! This is my health, not a risky investment that I should be wavering back and forth about. There just shouldn't be this many decisions that *I* have to make.