The Lyme life

It's 7:19.  I just started my IV for the night.  Who'd have ever thought I would become so proficient at doing infusions?!  But they are as much a part of my life now as brushing my teeth. 

The new meds are making me feel pretty badly.  Because of the snow and Kellen's cold (which is now my cold) we haven't left the house much since Thanksgiving.  It's good because I get to rest.  But, I also think the less I do, the more tired I realize I am.  It's easier to think I'm better when I get out of the house, run a few errands, get some fresh air.  Instead, this week I've spent a lot of time watching TV from my couch. 

My appetite is also shot.  I go from being so so hungry that nothing can make me full to a place where absolutely nothing sounds good.  I ordered Chicken Parm from a local restaurant tonight, and it was SO good.  I shouldn't have eaten it all.  I certainly wasn't hungry.  But I ate it.  And it was good to eat a big meal (I ate relatively little at Thanksgiving).  I still have to eat my nightly fat so that I can take Mepron.  I'm hoping egg nog is enough because I don't think I can manage anything else. 

There are so many things on my mind to write, but I'm just so tired.  It's hard for me to believe that this is me, better.  I don't have shooting electric shock pains anymore.  I am not nearly as tired as I was the year I went undiagnosed.  The neuropathy has diminished and is almost nonexistent most weeks.  The joint pain is mostly gone.  These are things to be celebrated.  But now, with this new drug, I am tired again, no energy for celebration.  And I still don't feel like I can get a good breath.  And I'm dizzy.  It's the symptom that won't relent.  I have hope that this combination of meds tips the scales for improvement. 

Tonight I'll listen to my hypnotherapy CD before I go to bed, hopefully giving me another solid ten hours of sleep.

This is the lyme life and certainly not what I imagined my twenties to look like.